Kevin Patterson’s Story

 

Kevin was born November 19, 2004 and he was a healthy baby and full term. When Kevin was a month old he contracted the RSV Virus and went into respiratory arrest and was admitted to Westchester Children Hospital. After a week, he was sent home with a clean bill of health. It was not until Kevin turned one that we noticed something was not right. We thought it was the last effects of RSV and complications, but our pediatrician said it was not and he seemed ok. When Kevin turned two we noticed his speech was not developing like his sister’s was. At that age again we went to our pediatrician and he assured us that Kev was fine and he was just hitting his milestones a little later. We watched Kevin for another year and we felt that something still was not right. He was playing and stumbling a lot and his speech was still not fully developed. His sensitivity to water was like it was hurting him. Kevin was 3 years old at the time and almost ready to start school in the next year or so. Our doctor finally referred us to a child neurologist and it was confirmed that Kevin did indeed have a problem. The doctor stated that is was Medical Clumsy Child Syndrome (also known as Dyspraxia). I had never heard of the disorder and wanted to find out more. My searches led me to the UK sites about Dyspraxia and I was able to read about the list of things that Kevin might develop or encounter. Kevin started therapy in NY (speech, OT, PT) and did fine. He went into kindergarten in NY and was doing wonderfully with his special ed class. We joined Dyspraxia USA and we’re very happy we found that site.

 

We moved to Texas and tried to get Kevin into a special needs class. That was a nightmare; not only did Kevin, who was to start first grade, end up back into kindergarten, but we had to fight for his services, which the district did not readily supply all children. After a long haul and many meetings we finally got what he needed. Kevin today is riding his two-wheel scooter, loves soccer and is learning to ride his bike (slow but sure progress). His social abilities have gotten a lot better and he has a lot of friends. His sensitivity to water (shower) has seemed to reverse itself and now he is like a fish — he loves to swim. He is doing so well in school that it surprised his teachers. We have high hopes for Kevin and his future. I think the most important part of having a child with Dyspraxia is educating the schools and others about it and being an advocate for your child.